One of the frustrating things when Kaitlen had the Henoch-Schonlein Purpura (HSP) was there was no time line for me to go off of. I know all the cases can vary, but it's nice to have something more than "it's takes about a week" which we found out later it can take upto two weeks to do it's thing. So we didnt know why this happens, and day in and day out we had no idea what to except-no idea when it would end.
(Click on pic for larger view)
I made kaitlens time line in case there is someone out there looking for one. This went from Dec 14th 2009 to Dec 24th, 2009.
(Sorry FB people you already know most of this) She slept most of the day on Thurs, Wednesday really wore her out. So, Friday was her class party. (yay) She was so excited to go see her friends and the teachers.
Her party ran over the 1/2 hour it was suppose to be so I left her there and went to cody's class for his. After Cody's was over I went back and got sister. By the time we got home she was not walking again :( outings are officially a no-no while she has this.
Today wasn't a good day. She was in pain and her pain meds were making her vomit pretty bad. So I had Ben call the peds office to change her pain med. The meds she wanted to change them to she couldn't because it couldnt be called in over the phone it had to be a written Rx. So she is still on the Codeine, but they also added Zofran so she doesn't throw up. So finally this afternoon she got the Zofran dose and about an hour later she ate a couple bites of oatmeal and about 20 minutes after that I gave her a 1/4 does of pain meds and 30 minutes later the world was right. She didn't get sick, she actually ate dinner, and since her pain was under control she could walk. Such a relief that she is feeling better. Now I have to keep her from getting up and walking, lol. The Dr wants to see her in the office on Monday and recheck her kidneys and see how she is doing by then. It generally takes a week, but this Dr on the phone said it can sometimes take 2 weeks. Monday will be a week, we are hoping that she's better by then.
Here are some pics of her arm and stomach. Her legs look so much better. She also has a spot on her ear. If you look hard enough its that pinker spot midway down.
The abdominal part of the HSP started this afternoon at literally like 3:45. Funny how with this, things just come on all-of-a-sudden. He almost thought she wasn't going to get the abdominal pain. She, unfortunately, is vomiting. She has to stay hydrated because of how this can affect the kidneys. We have now switched to pedialyte to help her out.
She's not asking for any pain medicine right now which is good because I don't think she could hold it down. It's been 8 hours since her last dose? :( I feel so bad for her. We were going to take her to her party at school on Friday and during her last throwing up episode she said she doesn't want to go to her party. I just hope she's feeling better soon.
I went to pick kaitlen up from school as normal and on the way to the car she was limping very bad. Like when your leg falls asleep and your knee dips down when you step. I asked her if her foot had fallen asleep or if she hurt it. She said she hurt it, that there was a scratch and a bump on it................ I lifted her pant leg to this and almost died. As im leaving the school I call Ben to tell him Im headed straight to his work to call and make a Dr appt that there was something wrong with Kaitlens leg.
We get to the Dr (even debated the ER, they are right by each other) We were fitted in with in an hour.
As soon as the Dr walked in Kaitlen asked him,"Do you know what this is?" shaking her hands at her legs..... He said, yes I do. My Granddaughter had the same thing a couple months back. (Right then and there i felt SOOOO Much better)
Kaitlen has Henoch-Schonlein Purpura she was sick last week and missed tues-fri from school so it really helps explain it. Her autoimmune system has freaked out a tad bit. At the Drs her right leg had only a couple small spots and now its just like the left leg. she is getting small spots on her bum now. i wonder what tomorrow will look like??
By the time we got to the Drs she could no longer stand or walk because of the pain. :( He has given her codine for the pain. It's only going to get worse and he says by the time shes done with it she'll look like someone beat her with a rubber hose.
He tested her urine to make sure there was no blood from her kidneys and their wasn't. He says we can come back as often as we want just to ease our worry. I hope her tummy doesnt hurt to bad when that starts :(.
I have never heard of this and so far no one I know has ever seen this. Now, I'll see it all over the place, lol.